I went with Hannah today to take Clay-bugs to two doctor’s
appointments—he saw his pulmonologist and his nephrologist.
As usual, he took everything in with wide eyes, all the way there and back.
In the waiting room, he did his usual
monkeying around to get people to notice him.
He caught the eye of a little girl who sat between her mom
and, I presume, her nana. Her mom
eventually shared that the little girl had been born with her heart only half developed, that she was on life support for four weeks, and given up to die at
one point.
The little girl made an amazing turnaround and was
eventually able to have a heart transplant.
She also has several other serious health issues, but on top of that,
she was diagnosed with lymphoma about a year and a half ago.
Her mom said she’d done remarkably well with treatments for
the cancer. She looked pretty healthy,
and was up and about on her own. Like Clay, she’s on prayer lists all over the
country.
She’s a sweet 10-year old with freckles, and her name is
Taylor. I’m definitely going to be
keeping her in my thoughts and prayers, as well as her brave momma.
It doesn’t seem fair that anyone should have to endure so
much.
Clay wasn’t so smiley when we were called back and the
nurses tried to get blood pressures. As
soon as they laid him down to measure his length, his feelings were terribly hurt. The last time he was forced to lay back on an exam table, he got five shots, and he clearly had not forgotten.
He was in a much better humor by the time the docs came in,
though.
We found that paper towels are a lot of fun when you wear them on your head. 
Both doctors thought he looked great and that Clay's obviously getting great care. They didn't make any changes, in anticipation of the surgery in March.
Buuuttt...there are signs that Clay's tummy is straightening out on his own. He's been tolerating the stomach drain clamped off for long periods of time, and the doc gave the go-ahead to try feeding the stomach through the G-tube!
Wouldn't it just be wonderful if he didn't have to have the surgery? We're hoping and praying....
Buuuttt...there are signs that Clay's tummy is straightening out on his own. He's been tolerating the stomach drain clamped off for long periods of time, and the doc gave the go-ahead to try feeding the stomach through the G-tube!
Wouldn't it just be wonderful if he didn't have to have the surgery? We're hoping and praying....
After the appointments, we walked over to Clay’s first home,
the NICU of the Children’s Hospital where he spent the first eight months of his life.
Boy, did strolling that long hall bring back some
memories. I remember so well pacing
those halls, worried sick, begging God to help our little grandson make it
through.
What a sweet joy it was to witness him visit with a few of
his nurses, to see him smiling and interacting with the ones who worked so hard
to keep him with us. He seemed just as
glad to see them as Hannah and I did.
I wish we could have visited them all—maybe next time!
Sometimes it’s only in looking back that we can see how far
Clay has come, but he’s sure come a
long, long way since last year.
Although he was still in the hospital, he was already charming everyone. He was probably wearing his “Future Heartbreaker” shirt, a Valentine gift from one of Team Clay.
I don't know about "heartbreaker", but he sure warms this Nana's heart--and many others too, I think. :)
Although he was still in the hospital, he was already charming everyone. He was probably wearing his “Future Heartbreaker” shirt, a Valentine gift from one of Team Clay.
I don't know about "heartbreaker", but he sure warms this Nana's heart--and many others too, I think. :)
